Pandemic Reference Guides

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End of Life

The title of a document links to the Pandemic Reference Guides CD. This link will not work without the cd.
The name of the publishing organization is linked to their site. There is often additional and more current information available online. 
The web address URL is provided for use of these pages as an internet website.
Difficulties in Managing Pain at the End of Life    8 pages
Nursing Center
http://www.nursingcenter.com/prodev/ce_article.asp?tid=275158

Caring Connections   internet connection required
National Hospice and Palliative Care Organization, NHPCO HelpLine, 800-658-8898
Provides free resources, information and motivation for actively learning about end-of-life resources.
Promotes awareness of and engagement in efforts to increase access to quality end-of-life care.
Helps people connect with the resources they need, when they need them.
Brings together community, state and national partners working to improve end-of-life care.
They offer information on Advance care planning is making decisions about the care you would want to receive if you happen to become unable to speak for yourself. Caregiving, Pain, Financial planning, Hospice relies on the belief that each of us has the right to die pain-free and with dignity; and Grief.

The IAHPC Manual of Palliative Care  internet connection required
International Association for Hospice and Palliative Care
The International Association for Hospice and Palliative Care (IAHPC) is a not for profit organization committed to the development of palliative care world-wide. For this to happen there needs to be better professional education, and health care professionals willing to acquire the essential knowledge and skills necessary to practice palliative care.

Advance Directives are available for each of the states in the U.S.  internet connection required
National Hospice and Palliative Care Organization, NHPCO HelpLine, 800-658-8898
Power of Attorney for Health Care, lets you name someone to make decisions about your medical care?including decisions about life support?if you can no longer speak for yourself or immediately if you designate this on the document. The Power of Attorney for Health Care is especially useful because it appoints someone to speak for you any time you can not or do not choose to make your own medical decisions, not only at the end of life.
Instructions for Health Care, functions as your state?s living will. It lets you state your wishes about medical care in the event that you can no longer speak for yourself and: a) you have an incurable and irreversible condition that will result in death within a relatively short time, or b) you become unconscious and, to a reasonable degree of medical certainty, will not regain consciousness, or c) the likely risks and burdens of treatment would outweigh the expected benefits.
Donation of Organs at Death this is an optional section that allows you to record your wishes regarding organ donation.
Primary Physician, this is an optional section that allows you to designate your primary physician.

Wills and Estate Planning  internet connection required
If you don't make a will before your death, state law will determine who gets your property (and it may well not be whom you would have chosen), and a judge may decide who will raise your children. In your will, you can make these decisions yourself. 
Nolo Press provides do-it-yourself legal solutions for consumers and small businesses. 


Association For Death Education and Counseling Resources   internet connection required
ADEC is one of the oldest interdisciplinary organizations in the field of dying, death and bereavement. Coping with loss can be a very difficult journey. ADEC has compiled these resources for individuals who are looking for help or who wish to offer support and help to another who is coping with a loss.

Safe Burial Practices     6 pages
This section describes how to:
Prepare bodies of deceased VHF patients.
Transport the body safely to the burial site.
Disinfect the vehicle after transporting bodies.
Centers for Disease Control (CDC) and World Health Organization (WHO)
http://www.cdc.gov/ncidod/dvrd/spb/mnpages/vhfmanual/sec7.pdf 

Management of Dead Bodies in Disaster Situations  194 pages
Each disaster has yielded important evidence about handling bodies, particularly when the number of dead overwhelms the capacity of a country to effectively respond to an emergency.
This manual provides the technical information that will support the correct approach to handling dead bodies, taking into account the following principles:
When death is the result of a disaster, the body does not pose a risk for infection
Victims should never be buried in common graves
Mass cremation of bodies should never take place when this goes against the cultural and religious norms of the population
Every effort must be taken to identify the bodies.
As a last resort, unidentified bodies should be placed in individual niches or trenches, which is a basic human right of the surviving family members.
Pan American Health Organization (PAHO)
http://www.paho.org/English/dd/ped/DeadBodiesBook.pdf

Manejo de Cadáveres en Situaciones de Desastre   206 pages
Pan American Health Organization (PAHO)
http://www.paho.org/spanish/dd/ped/ManejoCadaveres.pdf

Infection Hazards of Human Cadavers  16 pages
This paper describes and assesses the infection hazards associated with cadavers (both in old interments and the recently deceased), indicates how they may be minimised, and aims to inform those with statutory responsibilities for the disposal of the dead. Some of the topics (body bags, universal precautions, viewing, hygienic preparation, embalming, and international transport of cadavers) are discussed in greater detail in an accompanying article.
Health Protection Agency  United Kingdom
http://www.hpa.org.uk/cdr/archives/CDRreview/1995/cdrr0595.pdf